I have been working Leo Pharma for a few months now with their website, QualityCare™. There were many phone calls, discussions and meetings before I decided to get on board with, what I believe, is a great source of reliable information on psoriasis.
QualityCare™ is a site for patients, healthcare professionals and carers providing information, advice and real life experiences. The information on the site is reliable as it is checked, double checked and triple checked. I know some people are wary of Pharma company sites, thinking they are selling their products. However, nothing is sold on the site, it has been developed purely to help people and most importantly, patients. It has also been written in conjunction with psoriasis patients.
The patients in the blogger universe are:
Helen a.k.a Flaky Fashionista. Helen will be talking about fashion & what to wear so even if you’re flaking you will still look fabulous. Helen is on Twitter as @ and has her own blog http://www.theflakyfashionista.com
Jess is a young woman who talks about work, meeting new people and going on holiday. Jess is also a fellow blogger with her site https://jessicaandpsoriasis.wordpress.com and can be found on Twitter as @
Rena, the beauty expert. Rena is a professional make-up artist who will give you tips and advice on how to look amazing. She is a psoriasis warrior who wears her scars with pride. Rena also has a blog https://psoriasisexposedbyrena.wordpress.com/ and is on Twitter as @
Then there is me, the foodie. I will mainly be talking about my passion of eating and cooking. There will not be much about telling you what you should or shouldn’t eat. It is more about enjoying your life and living without psoriasis controlling you. If you want to follow me on Twitter it is @SImonlovesfood
Last week saw the official launch of the Site and App and I was honoured to speak on behalf of the patients, along with Rena, about our experiences with psoriasis. We were joined by Anthony Bewley, Consultant Dermatologist, Barts Health, and Reena Shah, Specialist Clinical Psychologist in Dermatology, to give the healthcare view. It was great to meet both Tony and Reena who showed they care deeply about the welfare of the patient and are making a huge difference to people’s lives. It again brought into focus that psoriasis is not just a skin thing, there is a psychological impact also.
When you log onto the site you will be asked to log on, whether your create a full profile is up to you. I urge you to use this resource. Being a pharma company, Leo have to go through several stages of approval to ensure the information is both accurate and reliable. So whether you have psoriasis, care about someone who has it or just want to know more, it is a great resource.
Along with the site there is a new App also, MyPso. The app is very simple to use is available on Android and Apple, just search MyPso by Leo in your market places and you should find it. The app allows you to track your symptoms and treatment, you can even put in what seems to trigger your flare ups to give you an overview of your psoriasis. There is also the ability to take photos of your patches so if you are on a treatment plan you can keep a record of how your skin is improving (or not). The results of this can all be produced in a pdf report which you can print off, view on your mobile device or even email to your doctor. It helps you prepare for your next appointment with the doctor and makes sure you don’t forget to tell them anything. The App also has a reminder tool so you don’t forget those all important treatments. The app is also completely anonymous.
I have been “itching” to tell you all about this as it has been extremely exciting to work on and have put a link to my first post here. If you haven’t visited the QualityCare™ site before it will give you a free view, to view again later you will need to create a profile.