After all the problems with my consultants and even though the last consultant barely looked at my skin, I have now started light therapy. I was hoping for biologics this time as the light therapy, whilst usually effective, is a bit of a pain with 3 visits to the hospital each week for up to the next 6-8 weeks. I am on UVB treatment which means I stand in a box whilst the light does it magic. I’m on UVB which are the burning rays so there is no likelihood of getting a tan, possibly a healthy glow at the most. I have had this treatment before, 3 times before, and each time it has been less effective. I have not cleared so well and a flare up has occurred sooner each time. The last course I had gave me almost clear skin for about six months and even though that isn’t long, when you live with psoriasis, it feels like a lifetime.
My first session was about 30 seconds and today’s was about a minute. As the sessions go on, the time should continue to increase. It’s not an exact science though as it all depends on how my skin reacts. Your skin usually goes a bit pink some time after each session and this should die down by the next day, if it doesn’t there is the possibility that the next session will be reduced or even cancelled. So far I’ve had a little pinking but all feels okay and there is no visible difference as yet, it is very early days though.
There is an added issue this time round which is I have a cold. This creates a problem as my psoriasis often gets worse when I have a cold and if it develops into a coughing & sneezing cold then I will not be allowed in the hospital to avoid infecting anyone else. I am desperately fighting this cold to avoid this.
Whilst I’m on this course of therapy I have to be careful about exposure to sunlight. Luckily there hasn’t been too much sun so far but even on a cloudy day I have to remain covered up or wear factor 50 sunscreen. Even if I’m going to pop down the shops, I have to make sure I don’t expose my skin to the sun. Partly it’s so the nurses can be sure how much light I am being exposed to and partly to avoid burning by overexposure. There is of course the increased risk of skin cancer so all this helps to reduce that risk as much as possible.
I have decided to record the progress of the treatment this time, something I’ve never done before. Below are photos of some of the worst affected areas of my skin which I’ve edited to avoid showing off my flab. It is really strange looking at the pictures in full, especially of my back which I don’t see very often. I didn’t realise until tonight how much of my back was covered, you could play dot to dot on it. So this is how I look now and I will be posting updates as the weeks go on.