Okay, the day has arrived. Would you believe that my appointment was at 11.10am and it is now only 12.30pm. I have seen the consultant (another different consultant), had a wasted wait at the pharmacy, driven home and had lunch. That may give you some idea of how things went at the Hospital.
I was at first pleasantly surprised when I was called in to see the consultant almost dead on time. This should have been a warning sign. This Doctor doesn’t hang about. He asked some questions, cut me off in my answers and that was it. The conversation went something like this.
Doctor: “What are you using currently?”
Me: “Only Aveeno, nothing else works, in fact most topical treatments have made my skin worse”
Doctor: “Even Dovonex?”
Me: “Yes and Dovobet. They both make my skin very sore and more patches have been appearing.”
Doctor “Well keep using the Dovobet two times a week.”
Me: Stunned silence.
Doctor “Have you had light treatment”
Me: “Yes, three courses but it only lasted 6 months last time, I…”
Doctor “Okay we will refer you for light treatment”
The Consultant did ask to see my skin, well my torso and back. No questions about how am I doing, how am I coping, no fresh PASI scoring (not actually sure the Hospital have ever done that since my first visit ten years ago).
The appointment finished with the doctor asking how my joints are as I was putting my jacket back on. As I started to answer he interrupted again and said he will ask my GP to refer me for a non-urgent assessment with rheumatology. Me again in stunned silence, what? Why do I need to see them? Why should I bother when they weren’t too bothered last time and sent me away once I had shown improvement. I have some aches and pains but nowhere near what I used to have. In fact between my skin and my joints I could live with the aches and pains, I cannot live with my skin.
I was also given a prescription for something or other which I had never heard of before, no explanation given of what it is but it contains Dovobet. So back to the start, Dovobet is f*****g irritating me. Oh and this stuff also contains Coal Tar (see Dovobet comment). Needless to say, once the Pharmacists had seen my presctirpion and explained it to me, I told them not to bother making it up. Why pay £8.05 (when did that happen?) for something I have already told the Doctor doesn’t work. Maybe he didn’t understand when I said everything that has been prescribed for me is irritating me and making my skin extremely sore.
I left, depressed, annoyed, angry, irritated. I may not even bother with the light treatment. What is the point of messing up my life and work schedule for what will be a few months relief, a treatment that is less effective every time I have it. Oh and not forgetting that once you’re 75% improved they send you away. You don’t need Sherlock to deduce why it doesn’t work effectively.
If there is a good Doctor or hospital out there that is happy to see me, given the open referral system that only gave me one choice last time, please let me know. I’m happy to see a different Doctor, why break the habit of the last decade with only seeing the same consultant twice.
It was quite clear that before I even walked in that the decision on my treatment had been made. I didn’t really need to be there. The Doctor didn’t listen, didn’t care. Broomfield Hospital, Chelmsford, you need to learn a lot about psoriasis treatment.