I may be exaggerating a bit by calling this a saga. it is how it feels sometimes though. It all started last summer when my last consultation was moved with so little notice I had no chance to make the appointment. As I couldn’t make the appointment I was referred back to my GP. Oh silly me and my lazy ways not bothering to make an effort, I mean forget work, I’ll just leave the office when I want with no notice, I’m sure my employers would be more than happy for me to come and go as I please. So since then I’ve been a little miffed and quite honestly I have been stewing on the situation since.
I still think that the hospital wanted me off their books as the previous appointment had ended with the consultant saying my psoriasis doesn’t look that bad and there’s not much they could do for me. Well, not surprisingly, my psoriasis steadily worsened and by Christmas I was in a state, see my previous post Lost for more details on that. Given the lack of service from the hospital I decided to visit my GP, as I needed something to just get me half sane, and asked for a referral to a GP with special interests (GPSI).
A few weeks later I hadn’t heard anything and five weeks on I find out that the earliest he GPSI would be able to see me is June. June? If I had to wait until then I’d have ripped my skin off, believe me it’s pretty scarred now from excessive scratching. So I may another appointment with the GP and explain that I can’t wait that long, the current meds are killing me (more exaggeration) and I need something other than topical treatments. All medicated topicals seem to irritate my skin currently, even the mildest forms are resulting in very sore raw looking skin. So sore than wearing clothes or laying in bed becomes painful. I also threw in that the only way I’m sleeping is to take my pain killers that are supposed to be used when my arthritis is bad. This is not a good state of affairs.
I am now on Aveeno cream, prescribed Aveeno cream so it’s cheap as chips, well ish. It’s a lot cheaper than having to pay full price for 3 bottles of the stuff. As the Doc said, I need to give my skin a rest. I wish psoriasis would take a bloody rest. Anyway, as I’m sat there the GP dictates a letter to the hospital to stress that topicals are not up to the job (he didn’t quite say it like that) and that alternative treatments must be explored. This was 10 days ago and yesterday I received the letter from the hospital. What has struck me is it was the hospital rather than the usual referral letter where I choose the clinic.
So I am now going back to the hospital, not until May but that is a whole month earlier than the GPSI would have even started to think about seeing me. I’m feeling unsure about it all, it will be yet another consultant, yes another new face, someone else who doesn’t know my history and will take a fleeting look at my file before seeing me. You never know though, maybe this one will listen to me. We shall see.