Okay, there’s only one day of psoriasis awareness week and I’m only just writing a post. It’s been difficult this time to know what to say. Over the years and especially this year, I have said so much on the subject, sometimes deadly serious, sometimes light heartedly. I wondered what more I could say, I have even turned down opportunities to speak or write. When I think about this I realise that it isn’t because I have nothing to say, it is because lately I have frankly been bored with the whole subject. I don’t mean bored with helping raise awareness, just bored with psoriasis in general. I have had this condition for over ten years and I would really like a change please. Then as I sit here I feel selfish and a bit guilty as I know there are people who have had the condition longer than me and have it a lot worse.
This year has been particularly difficult for several reasons, not all psoriasis related, which led me to this point of feeling basically fed up with the whole thing. I find myself getting annoyed, annoyed that I can’t just say okay I’ll do something else because whatever I do, wherever I go, psoriasis is with me. The good thing is that this is really the only thing I’m fed up with. I have a loving family, a very supportive and understanding wife and the coolest cat on the planet, Bob. So life is generally good and so more guilt comes along as all I can do is moan about my skin. But then psoriasis does that, it can take over your life and if you’re not careful it will lead you on a downward spiral to despair and it’s a very difficult climb back up from there.
So that’s my latest little moan and I actually feel better already. It really is good to vent your anger at psoriasis sometimes whether you find someone to vent to or just write it down. There are many blogs out there and many of those bloggers will be happy for you to guest post or just email them if you need to get it out your system. This leads me back to Psoriasis Awareness week and my main message is you are never alone, there are nearly 2 million of us in the UK alone who have this condition and every one of them understands what you are going through. Find someone who understands and talk to them, talk to me, talk to your cat, dog, goldfish. I guess all I’m saying is, well just talk about it. Don’t bottle it up, its not a nice place you end up in, a place I have personal experience of and will never let myself go back there.
If you’re really stuck, here are some great people and resources, please use them.
The Psoriasis Association www.psoriasis-association.org.uk
Jessica And Psoriasis www.jessicaandpsoriasis.wordpress.com
Comedian and Doctor Who Fanatic, Toby Hadoke www.tobayhadoke.com/psoriasisblog
Just a Girl With Spots www.justagirlwithspots.com
The Flaky Fashionista www.flakyfashionista.blogspot.com
National Psoriasis Organisation www.psoriasis.org
Somewhere to log your medication, Patients Like Me www.patientslikeme.com
If you are struggling with the mental issues psoriasis can bring with it, these guys have worked with the psoriasis association and can give you advice. The Mental Health Foundation http://www.mentalhealth.org.uk
A cheeky blag for the E-book that some of the bloggers above, my wife and I contributed to www.exorex.co.uk/ebook
And finally, a group on Facebook http://www.facebook.com/#!/groups/2204404890/
There are many more resources out there, I hope the links above help you as they have helped me.